A man and a young girl lie in bed, both appearing to be asleep. The girl has curly blonde hair and is wearing a pink blanket. The man has dark hair and a beard, and is resting with his head close to the girl.
A man and a young girl lie in bed, both appearing to be asleep. The girl has curly blonde hair and is wearing a pink blanket. The man has dark hair and a beard, and is resting with his head close to the girl.

ANE is an extremely rare form of encephalitis that causes sudden inflammation and damage within the brain.

It most commonly affects children and can progress very quickly after what initially appears to be a normal viral illness.

Because the condition is so rare, many people have never heard of it until it affects someone they love.

A young girl with closed eyes, featuring a digital illustration of a human brain overlaid on her head, with glowing synapses and neural connections.

How Can ANE Progress?

Design emphasizing long-term impact with a heart-shaped icon and text about the lasting effects of what appears to be an Avopuncture Neurological Evaluation, including a message about leaving lasting neurological injuries and ongoing challenges for children and families, attributed to Eira Lewis.
A card showing information about emergency treatment for children affected by ANE, with a hospital icon and pink theme.
Pink informational card about neurological symptoms with an illustration of a brain and the number 02.
An informational card about viral illness, featuring a simple virus illustration at the top, with pink and black text explaining that viral illnesses like the flu or cold can lead to conditions such as allergic rhinitis, and attributed to Eve Lewis.

Eira’s Journey

Eira’s diagnosis brought ANE into the lives of our family in a way we could never have imagined.

What began as a common cold rapidly developed into a life-changing neurological condition, turning everyday life into a journey filled with uncertainty, strength, resilience, and hope.

Through this website, we hope not only to support her ongoing journey, but also to help raise awareness of Acute Necrotising Encephalitis and the impact it can have on children and families.

Two young children, a girl with a nasal tube and a pacifier, and a boy with blue eyes and no visible medical devices, sitting on a striped black sofa in floral pajamas. The girl is smiling and the boy is looking directly at the camera.

Why Raising Awareness Matters

Illustration of a large, red, hand-drawn heart with a dark outline.

Because ANE is so rare, awareness and understanding remain extremely limited.

Many families have never heard of Acute Necrotising Encephalitis until it suddenly changes their lives forever.

Support for Families informational card with an icon of three people and a heart, and text about families affected by rare neurological conditions, signed by Eira Lewis.
A graphic with a clock showing 11:00 and a pink checkmark indicating early recognition, accompanied by text about the importance of early recognition for better understanding of symptoms, attributed to Eira Lewis.
Inspirational quote poster with a star graphic, pink accents, and the message "Hope For The Future" by Eira Lewis.
A promotional poster with a drawing of two hands holding a pink heart, and text about community and compassion, mentioning Eira Lewis.

Further Information & Support

If you would like to learn more about Acute Necrotising Encephalitis (ANE), encephalitis, or support available for affected families, the following organisations and resources may help.

Find Out More

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Support Eira & Help Raise Awareness

By supporting Eira’s journey, you are also helping raise awareness of Acute Necrotising Encephalitis (ANE) and the impact it can have on children and families.

Thank you for being part of this journey with us.

Support Eira
Read Eira's Story